What regimen did you follow for 4 years before your PCa could not be found?
Patient Bill Manning Transcript
Opening Title: Could you describe your regimen before your cancer became undetectable?
I was diagnosed with prostate cancer in 2009. This was a result of an elevated PSA that had spiked at 6 whereas my previous PSA had been roughly around 4. This was also brought about because I had a slight infection and that was one of the issues that brought this to bear. My urologist felt it was necessary to have a biopsy at that time. After the biopsy they found a small amount of cancer in one of 12 cores, I received a grade of T1C .I was given a Gleason score of 3 plus 3, and I was told that I was an excellent candidate for surgery. This was primarily because of my age and my good health, but basically it came down to surgery or radiation as kind of a whisper oh also active surveillance what was called watchful waiting, something you might consider. At that time my wife was very, very upset about this, and felt that we should be looking into treatment as soon as possible.
I wasn’t convinced and I wanted to do some research before we made that kind of move, so I joined a support group then joined two support groups, did a lot of research on my own, and at four months later, came to the decision that active surveillance was a good path for me,and at that time my wife also did support this decision as long as I was going to be active in it.
And at that point I enlisted the services of another doctor to get a second opinion, and had a Color Doppler ultrasound performed. He felt that the active surveillance was an adequate course but he wanted to see me in about six months to have another one performed just to back that up which I did. He confirmed that that second one was the same diagnosis and wanted to see me on an annual basis from that point on.
My urologist wanted me to have an annual biopsy because that was kind of standard of care and I declined that. I wanted to see more evidence of some kind of progression before I went through that procedure again, and basically my PSA dropped from 6 down to the mid to high 4s, and has been in that area ever since. There was a time when it rose to five and a half at which point my urologist felt well, maybe you should have a biopsy again, and I declined, in then in July of 2013 I went for another ultrasound and my doctor felt that there was an area that was maybe a little suspicious and he convinced me that I should go ahead and have what he called a targeted biopsy at that time. Now this was a biopsy that went actually into the area that the original biopsy had found that small amount of cancer, and it was also the same area where as he called it suspicious area existed. So when he did that he took 7 core samples, sent it to the lab, lab report came back negative.
They didn’t find anything, anywhere, so as a backup I took those samples and had them sent to the original lab that did my pathology report and had them look it over, and they confirmed, that they couldn’t find anything, either, that all the core samples did not contain cancer.
So from that point on it only confirmed my resolve to be involved in active surveillance, that means PSA tests twice a year, a DRE once a year, and should any of those issues change, should I have say three PSAs in a row that continually climb, or should the DRE come up with something that doesn’t seem right, then I would go into a much more active mode, multi-parametric MRI, Color Doppler ultrasound, and whatever else is available at that time to get a more through diagnosis of my situation and should it warrant it then I might look at some treatment at that time, however, through a major alteration in my diet, continuing my exercise and looking for a generally healthy lifestyle, I feel that’s something that will do more to keeping the cancer in check or in this case potentially eliminating it, then anything else.
Closing Title: 4 ½ years after diagnosis a multi-parametric MRI showed that Bill’s prostate cancer had become undetectable.