After 13 1/2 years on active surveillance what advice do you offer?

After 13 1/2 years on active surveillance what advice do you offer?

Patient Jerry Mayo Transcript

Opening Title: What treatments did you choose after 13 ½ years on active surveillance?

I was first diagnosed with prostate cancer with a baseline PSA of 5.7. I was always concerned about where do I stop, you know I started with a PSA of 5.7 I went down at one point to 2.8, worked its way up to 5, and where do I stop. My PSA now was about 7.7 and I just felt like I was uneasy doing active surveillance, I wanted to take an active and treat my cancer, so I decided on hormone therapy,which I did for 13 months, and basically it was a hormone therapy that was intermittent where you go for a period of time and after 10, 12 months if your PSA has performed properly to the oncologist’s OK, they stop it after 13 months and then watch and see how your PSA goes from there.

My PSA on hormone therapy went down dramatically fast right away. After 6 months it was down into the point zero area, at the very low point after 13 months my PSA got down to .008. I quit, I went off, no treatment now, and my PSA started to rise, and it went up rapidly fast within a 3, 4 month period to 2.4. I didn’t like the doubling time, from .008, now 2.4, so I decided that I would look into treatment, whether I would get Brachy treatment, or Proton, or IMRT, my doctor told me that it would be good to look into SBRT and I did, it seemed to work for me, it was a matter of 5 treatments instead of 40 some odd treatment with IMRT, and so decided on it and that’s what I did

I would go every other day, which is 5 treatments spread out through ten days which makes two weeks, you know five days in a work week, I liked the treatment, it was easy, it was…they implanted by the way 3 gold seeds, they’re not radiated, they’re just benign, but they guide the machine, and that helps you not to get burned rectums, or burned bladders, or your urethra burned, it directs it more, and as you move, your body moves, the prostate moves while you’re getting treatment, the gold seeds keep the machine right on target. After I finished my treatment, my PSA was now down from 2.4 to .85, and I took that PSA about three months after I stopped treatment. Three months after that I took another PSA and it was .58 and three months later which my recent PSA it was .53. And I’m now I’m just up to date that’s where I stand today.

Closing Title: With active surveillance treatment can be started at any time

Patient Jerry Mayo’s take-home message is to be very diligent and active while on active surveillance.
Patient Jerry Mayo
When Jerry started active surveillance in 2001, everyone called it “watchful waiting.” Jerry joined the Prostate Forum of Orange County, California, an Us-TOO support group chapter with mentoring by another active surveillance patient, Lew Pfeiffer. Jerry altered his diet and stepped up his level of exercise. A paratrooper in his youth, Jerry said he was never frightened by his prostate cancer. While Jerry and others in the group followed active surveillance regimens and regularly saw their urologists, some, including Jerry, also consulted with a medical oncologist for another perspective.Jerry’s prostate cancer remained relatively stable for 13 years until there was an upturn in his PSA and he decided to choose a treatment. Video reviewed and approved by Jerry Mayo, August 1, 2015

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